Wednesday 2 May, 2012
We have a meeting with the palliative care team tomorrow. I will be asking about the side effects of the potential low-dose chemo to help in our decision making down the track. I don’t want her to lose her hair or her appetite, been there done that – if it is not going to change the outcome or enhance the quality of her life then we are not interested. Emily is far too knowing now, and will not want to lose her hair after finally growing it back or to be fed through a tube up her nose again if she losses her appetite. That would be torture for her. We will know more about it tomorrow.
Emily had a great day at school today. She was super excited about her maths test score (it was up 5 marks from Monday)!
The kids all got goldfish at the weekend. I said she was very responsible feeding them every morning. Em said she worries about them but she doesn’t worry about big things like the world ending and said ‘you have to have fun everyday until you die. The day before you die you shouldn’t buy anything because it’s a waste of money and you should do a fun activity like Clip n Climb’.
What an awesome perspective!
We have no idea what is going on inside Emily’s body at the moment but she remains symptom free – long may it last!
Kath and Gary
KATHY
May 8, 2012 @ 4:18 pm
Dreaded lurgies you DONT need Emily.
Kick them to the curb one by one.
Get better real quick…..thats not Drs orders thats the Kesselers ones but sure his antibiotics will help as well.
Tomorrow will be a better day Im sure.
Love Us Kesselers XXXX
Gaz&Ruth
May 5, 2012 @ 5:37 pm
Great that Emily is enjoying life ……thinking of you all.
Gaz&Ruth
Marilyn
May 4, 2012 @ 8:55 pm
To all the Woodin family – you are ALL pretty darn amazing!!
What a busy school holidays you kiddies have had. Hope your gold fish are well Emily. Let me know what are the names of your gold fish? Are they getting fat?
Lots of love to you all
– Samantha, Zoe and Anika’s grandma
Lea Ribbon (Hatwell)
May 3, 2012 @ 11:59 pm
Just lovely to hear Emily is so happy and symptom free right now…long may it last!She is one amazing lil lady! Lots of love to you all as always xxxxxxxxxxxxx
Vanessa
May 3, 2012 @ 9:59 pm
Hi Em,
I also love clip and climb so that is a fabulous idea!
My kids want a goldfish, but I know I will end up cleaning it out and I don’t want that job, also we have 3 cats that would like fish for tea, which would not be a good thing at all.
Always thinking of you.
Annalise Olsen
May 3, 2012 @ 9:17 pm
Wow, am just blown away as Em is just amazing such a great perspective to have, the world would be a much better place with more people in it with Ems attitude. Lots and lots of love, I think about you guys so much and send positive thoughts and best wishes xxxxx
Pluck Family
May 3, 2012 @ 7:21 pm
Emily, you are an amazing person. I don’t know anyone with as much strength and courage as you. You are definitely our idol and we love you sooooo much.
Keep being you cos you rock!!!
Love and kisses
Uncle Steve, Aunty Fliss, Keanan and Jake.
oxoxox
Chrissie Wooddin
May 3, 2012 @ 7:02 pm
Wise words from our beautiful old soul, she says things others her age wouldn’t even think of, Em you are just amazing, love you heaps
Aunty x x x
Paula Chambers
May 3, 2012 @ 6:54 pm
Oh Em, you are just so delightful :) It was so great to see her the other day and see how happy and well she is looking. Keep up that wonderful attitude – gosh she can teach us adults a thing or two. All the very best for continued good news tomorrow. Will catch up with you soon Kath.
Love and best wishes to you all.
Paula and Peter
KATHY
May 3, 2012 @ 3:51 pm
Emily…..
You never cease to amaze us. If only some of us adults
could have the same outlook on life and how to live it
we’d be set.
Good luck for tomorrow thinking of you
Love The Kessselers XXXX
Denise Ellis
May 3, 2012 @ 1:34 pm
Bless Emily and her profound wisdom for someone so young!!! You just have to love her positive outlook about life!!! Go girl, you have a lot more to teach us all about living!!
xxx
Paula Knowles
May 3, 2012 @ 11:46 am
Thinking of you all today, sending you huge hugs. That’s our Em always positive, always looking on the bright side, beautiful beautiful girl!!
P, Rich, Maddi, Libs & Blake x0x0x0x0x0
Taylor Family
May 3, 2012 @ 11:02 am
Saw Emily at the school gate this week while dropping Nicole off. Aimee was with me and the big cuddle she gave me and Aimee made our day and it was good to see her looking happy and well.
Aimee is often asking me if we can go and see Emily and I have told her we are going to visit very soon or may be another play at our house.
Will catch up very soon
Love Melissa, Brian, Nicole and Aimee.
Catherine
May 3, 2012 @ 10:44 am
What an amazing family. Jack is such an awesome kid, a true product of great parents. Kathy and Gary, you have and are being faced with decisions that no parents have to go through, you amaze me with your ongoing strength.
What an amazing outlook on life Emily has, a beautiful kid.
Louise Dunn
May 3, 2012 @ 10:21 am
Have been thinking about your family all week. Hope everything goes well today? Emily has a great outlook on life, she’s got it sussed. I think a lot of adults need to take her lead on their own lives.
Life should be fun!
Thinking of you all,
Louise Craig and kids.
LIBBY
May 3, 2012 @ 10:11 am
Emily has the most fantastic child view on the world and it is wonderful that you are able to support this fully.
Good luck for tomorrow xxx
leeanne
May 2, 2012 @ 11:01 pm
Bless you emily and your amazing family.
Always in our thoughts.
Leeanne and Brooke xo
Lyndy Prendergast
May 2, 2012 @ 8:39 pm
Thinking of you guys always and especially tomorrow, seen Em yesterday after school, shes looking great and back to the Em of old, hard to believe this is all going on inside her body :( Love her outlook on life, shes one smart cookie :)
Lyndy, Barry, Alex & Brodie oxoxoxox