Please Treat Emily Normally – Sunday March 11, 2012
Hi Everyone,
Thanks to you all for the overwhelming support we have had already. Such a difficult time and your thoughts and messages help so much.
Just a quick update because I want to make it really clear that at this stage of Emily’s journey she is COMPLETELY NORMAL, has energy, and is her usual self (her pain is very well controlled). Emily is aware that she has a Neuroblastoma tumor in her jaw and feels OK about the pending radiation as she remembers that it doesn’t hurt. It will however make her more tired than usual.
This is all she needs to know at this stage and we will give her info on a needs-to-know basis. We will be meeting with the Oncologist tomorrow (Monday the 12th of March) to discuss the radiation plan. We aim to get Emily to school between treatments where possible. Whilst this low dose radiation isn’t curative it should shrink the tumor enough to give Emily some relief and eat normally again. It may shrink it entirely but inevitably it will come back there or in another location. It may be elsewhere now and a CT will determine if this is the case in due course.
Will update again when a treatment plan is in place.
Yesterday I had a shower about 5 minutes after Emily and she had drawn heaps of happy faces in the condensation. This sums up where she is at. She feels no different and won’t want to be treated any different. Of course I bawled my eyes out! The shower is the best place to cry!
Thanks again.
Kath
Derek Martyn
March 13, 2012 @ 10:17 am
Kath and Woody,
I’m so sorry to hear the news of Emily’s relapse. It is amazing to hear how brave she has been throughout the whole journey. Our thoughts are with you and your family.
D and Carrie
KATHY
March 11, 2012 @ 10:09 pm
fOR kATHERINE AND GARY
Keep a green tree in your heart and perhaps the singing bird will come.
All our thoughts are with you
Tony, Kathy Scott and Natasha
Amanda Templeton (Reid)
March 11, 2012 @ 9:06 pm
hi pluck and vanessa,
unsure what to say but wanted to send love to you both as i know you will be leaning on one another at the moment and it’s a hard road.
i’m at 25 elizabeth street, rolly, with an open door 24 hours a day for tears,timeout, coffee, wine, chocolate,playdates,anger or complete meltdowns.knock anytime. i mean it.
love and bear hugs
mandz and family x
Roydhouse family
March 11, 2012 @ 5:32 pm
Leona & Vanessa are right when they say that there is nothing we can do or say at the moment. There are just no words big enough or strong enough to express how unfair and downright wrong this is. All we can do is say you are constantly in our thoughts and we will do our best to support you as you take this most unwanted of journey’s with your precious girl.
Kate
March 11, 2012 @ 4:53 pm
Stay strong. And when all else fails, bawl (in the shower if need be). x
Paula
March 11, 2012 @ 1:40 pm
Thinking of you all with love and a breaking heart. x x x
Shelley, Abby, Alan and Olivia
March 11, 2012 @ 1:05 pm
I sit here and I don’t know what to say … I am numb.
My heart is broken and the tears wont stop. Your pain is also my pain.
Our girls have been through so much together … and Em does not deserve this! Life is so cruel and unfair.
During Abbys time in CHOC, Em was the only one who could perk her up, get her to eat, make her want to do something other than lie in her bed. She was the one who put the spark back into Abby when Ab’s was at her lowest point. And for this we are forever grateful. I just wish with all my heart there was something we could do to make this all go away for Em … but we know the reality is, there isn’t.
Please know Kath, we are here for you and your beautiful family. Whatever we can do for you we will, you will not go thru this alone.
Sending you all big hugs, and lots of strength to help you get thru one day at a time.
Love to you all – Shelley, Abby, Alan and Olivia
Rachael, Ian, Rosie and Andy
March 11, 2012 @ 10:21 am
Dear Emily, Kath, Gary and the rest of your beautiful family
We hope you are enjoying your Sunday….we have some exciting news for you….we are moving to Rolleston!! We hope that we can meet up with you at one of the parks, and you can show Rosie and Andy all the cool stuff that you and your mates get up to.
Rosie and Andy will be going to Clearview school – is that your school? Andy wants to play rugby at Rolleston and his dad is not very happy about that cos he is a football man like your dad.
I hear that you are needing some more treatment at the hospital….maybe we will meet up there?? Rosie is waiting for surgery on her knee and we are nearly at the top of the wait list…..I will email your dad and see when we know what’s happening. See you later alligator and keep smiling.
Lots of love from the Morris Greig family