$5 C.H.O.C Raffle
Hi Everyone,
As you probably know we are running a raffle to raise money to buy some books/DVD’s/games for the Child Cancer Unit where Emily has spent a lot of the year.
Due to logistical issues with getting the ticket stubs back from Auckland we need to postpone the draw until the 24th January. We will post the results on this blog shortly after.
Gary
Catie
January 13, 2011 @ 1:09 pm
Hi Kath
I can’t find out for sure until I’m back up at the hospital I go to, but I’m fairly sure I didn’t have the amplified gene for NB, just as Emily also doesn’t. I am following a family on Caring Bridge and their Lily does have the amplified NB gene, and her treatment is far more drawn out and uncertain than any I had.
I also found another NB survivor on an online community I am part of. She is in her mid 20s now, and she also was given 10%. Her treatment was in the late 80s with many of the frontline drugs, some of which was new in NZ when I later had them administered. I also brought my main hospital box out from storage, and while it’s got some of the very old original stuff I had, a lot of it appears to have been added from hospital stays I had in my later years. I did find my plastic tiara, my doll Julia, and my hospital teddybear, the latter which had it’s very own make-shift Hickman! I’ve done my best to fix him up with a new one I made from an old set of ipod earphones of mine…
Hope this helps with some of your questions from when we met the other day. I’m still working on getting those old photos, the earliest I’ve found at the moment lookss to be me at about the age of 10 or 11…